Cross-cutting working group
Disease Management, Disability and Inclusion
A platform for engagement, learning, coordination and advocacy on how NTDs affect disability and inclusion — promoting comprehensive patient care that addresses medical treatment, disability prevention, mental wellbeing, stigma reduction, and social inclusion.
The NNN cross-cutting working group on Disease Management, Disability and Inclusion (DMDI) provides a unique and growing platform for engagement, shared learning, coordination, capacity development and advocacy for interested stakeholders.
Neglected Tropical Diseases (NTDs) lead to significant morbidity and chronic disability and trap individuals, their families and communities in a cycle of poverty. Their combined Disability Adjusted Life Years (DALYs) equal those of Malaria, TB or HIV/AIDS, and there is considerable evidence that they are significantly underestimated when other consequences, such as stigma and mental wellbeing, are taken into account.
However, systematic consideration of “Disease Management, Disability and Inclusion” (DMDI) is lacking or relatively weak in most NTD programmes. So far only a few NTDs, such as trachoma, LF and leprosy, have formally included the provision of basic care for individuals affected into their elimination goals.
The DMDI approach promotes equitable and inclusive quality patient care reflecting the cross-cutting features of NTDs — “an approach that encompasses the medical treatment of NTD complications, the prevention and (self-)management of disabilities, promotion of mental wellbeing, reduction of stigma and promotion of other interventions and approaches that facilitate inclusion in society, such as human rights, the participation of affected persons and communities, and livelihood”.
Objectives
- To promote a comprehensive continuum of care based on a social disability model, and position NTDs within the wider field of disability.
- To identify cross-cutting issues and interventions relevant across NTDs and develop strategies, tools, and technical and programmatic resources for capacity development of NTD programmes.
- To identify opportunities for information sharing and cross-learning between NTD actors, and facilitate access to up-to-date information regarding research findings, developments and innovations in NTD-related disability.
- To promote and facilitate implementation research on patient-centred intensive disease management, disability prevention, mental wellbeing, stigma reduction, the participation of affected individuals and communities, inclusion and human rights.
Chair: Danny Haddad (CBM Global)